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A year ago it was really hard for me to picture us sitting in a park with the boys, playing and enjoying pretty weather. A year ago, I was just praying and hoping my boys would live.
As I sat there with my boys, helping Eli sit up, and making sure Isaac wasn't putting every stick and leaf in sight in his mouth... I couldn't help but look at the Children's Hospital off in the distance and be very humbled at where we are today. What a difference a year makes!
I am very thankful for the coming change of seasons- warmer weather, beautiful flowers. But I'm over-the-moon thankful for the "change in seasons" in our family, too. With each passing day, the boys are both getting healthier and stronger. Isaac is doing so wonderfully, eating everything in sight, and learning new skills daily it seems. He's almost fully caught up developmentally! I think I'll have a walker to chase around any day now! Eli is progressing so well- After 15 months, I think we are finally seeing some progress with weaning him off of oxygen. We have the "OK" from the lung doctors, and once we get an "OK" from the cardiac doctors, we can take him off of oxygen when he's awake- he will only need it for sleeping. And the doctors are hopeful that by the end of the summer, he will be completely off of oxygen! OH HAPPY DAY!!! We are expecting to get the official order from Dr. Kelly to be done with the helmet in about a week and a half, when we go back to the plastic surgery clinic. He's finally mastered sitting up on his own, so that means we get to repeat the swallow study, to see if he can go back to talking liquids by mouth. I could go on and on about the many areas of his health that have improved, but the point is this... for a baby who was dying this time last year... OH MY GOODNESS! Thank you, Lord! He's doing SO well!
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Steven Curtis Chapman- "Spring Is Coming"
http://www.youtube.com/watch?v=Bco4kmBHEKQ